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re: the above post is to Natalie Oct. 21st, 2008 10:00am
So, you can have ambiguous genetalia with SV & SW??? I thought it was just SV. Thanks for letting me know. I'm still confused with Rick. He has late on-set CAH and salt wasting? I'm very curious about his diagnosis because my daughter was diagnosed with late on-set CAH and saltwasting and was medicated as such for many years. We lived with a lot of fear being taught as a salt waster with vomiting, etc., that she could go into shock quickly from dehydration, etc. However, when we reached Kelly Leight and NIH, they said there has NEVER been a LOCAH and salt waster. They also said that many endos do not diagnose appropriately and over treat many people. So, Rick, are you the 1st of this kind? I don't mean to be a nag, I'm just trying to understand! thanks for your patience with me.
