Re posted as it was a request. I've taken the liberty of copying my requst as at todays date. I will check back at intervals to see it is met. Having studied IT for 12 months prior to flicking over to my Visual Imaging degree and we covered privacy, security, web and network secuirty. I'm aware that there are types of support network software out there that tie all users to commmiting an IP address when they use them. This protects ALL users when using a site and it guarantees they will receive genuine support without malice or posts such as the above, which are superfluous to requirement on such support networks. This is the ONLY type of support network that I would recommend any of my patients if I were a child's Doctor, as I simply would not want my of my patients exposed to fun and games in the circumstances. I'd recommend local support groups instead if such support networks did not exist.
Although in this community has it controversies and some like to post anonymously, that in itself as an option is too rife with possibilities for abuse as I am aware that if anyone wanted to simply protect their identity, it can be done when you create your used ID and can be followed by not passing personal details to people online that you do not trust. Only the owner of the domain can determine the IP address but not the 'identity' of the person. This is how a true support community works in the real world and people like me requiring support like to obtain it without others "misbehaving" and removal of membership is perfectly logical when this type of behaviour occurs. Been there done that but learned the good sides to it.
So it is with some disappointment that I find this forum is still run without such support networking security when it has been available for years and is becoming even more so.
As a Doctor or an author I personally wouldn't even want my work "tied" with such an insecure forum with such values. My ethics are such that I really wouldn't want my work associated with any body or support network that cannot provide secure, safe, friendly networking support to all that arrive at it. Perhaps this is why I do not take the suggestion of reading such a book seriously?
It hasn't been recommended by my Doctor and I can see it is being sold on other sites online, but to be honest even if I spent valuable time writing one or creating an educational tool, for the reasons above I would not tie it with this site. It somehow doesn't ring as professional to be honest and this is not the only place on the WWW that one can pitch such a book. Warnes book has been mentioned but he is professional enough not to affiliate with the site as are most Doctors. With good search engine placement, I suspect anyone could create a web page and sell something of that nature after seeing a "screen shot" and a short article intro with apa referencing.
I would like my sons image removed from your database Danny please. I gave it over in good faith that it would never be used or come up on any site that condones the type of behaviour above given that when parents are devastated with the birth of a CAH child, or the death of one or need "real" assistance, unfortunately you have some unsavoury characters stalking with the ability to resort to "put downs" and petty unwarranted comments. Jokey or otherwise, it seems highly out of place and immature within a support environment. I have a right to disassociate my sons image with such forum and I'd like it removed today!
