Hi- I haven't been on these boards for a while, everything was going so well.
My daughter's SWCAH is well controlled. Her values have been a little high lately, and I fear she is under treated and the Dr tends to not see the risks of that (she has grown much and rapidly lately), since the pendulum-swing currently favors under-treatment.
My duaghter is only 4, she has rarely needed injections, rarely been sick. But she has told me several times that she wanted to be a boy. I tried not to worry, and figured with her fetal virilization, that added to culture favoring Spiderman heroes, to her ruough-and-tumble physical nature. Now she has said things that emphasized more how she feels, and she said "I'm really frustrated with being a girl."
I've been reading all along that this is rare for CAH, and now here it is happening. My daughter doesnt say it often, but I can also tell that she has caught on (by the time she was 3) that she wasn't supposed to feel that way, so it was kind of a daring moment for her to give me this big revelation yesterday.
I'm guessing most of you haven't actually experienced this. Maybe some of you parents have noticed your CAH daughters were tomboyish, but everything was ok, lots of girls are tomboyish. Anyway, I'm really at a loss. I'd be lying if I said I wasnt' saddened by it. It could pass, I suppose. I'm torn between thinking thinking the solution must be obvious-common-sense- just accept her and don't be judgmental and let her express her tastes whatever they are, and thinking that, if I feel I should consult some professional help, then get help, it could be just a little help, just a consult for now, just some guidance.
I'd sure appreciate hearing from anyone who's been thru the same thing.
Thanks!
