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re: re: parents with daughters with S/Wcah TO ELAINE Jul. 10th, 2008 4:52am
hi im from the uk, i wrote to you briefly the other day, im not sure if you got it. i am not sure as to the sugery they do in austrailia, my daughter is 12, but didn't get sugery until she was 9, but they didn't go near her bowel, she may need a stretch in couple of years time,my surgeon was Mr Bianchi, he had separated simeese twins 2 yrs previous, he did amazing reconstrutive on my daughter.i didn't get what s/w meant but it is the same as S/L, i call it salt looser, CAH.my daughter is lucky, as she is very girly,ive read alot off books etc, and they all said the girls can be masculin and boystrus (spellin ? ), we all want our babies to be perfect,and even though it was biggest shock when she was diagnosed at 6 days old, i now am grateful it is a condition that can be controlled by drugs,just like to say, my daughter's had sugery but it asn't stopped er being a great gymnast, she can bend her body all ways & do the splits, that still makes me dizzy,
