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hello ....7 month old son with salt-wasting CAH in WV
I have been through alot in the last 7 months with my son whn he was 2 wks old coded 7 times i had no idea about CAH ....doctors didn't know what to do and we almost lost Timmy...when they were working on him they damaged his right leg (they wanted to take it off the first week..thank God they didn't) he only has a little use of that leg now ...but i hope it will get better.
We now have a great doc at John Hopkins......he has been a life saver.....it's a 4 hour trip there but it's worth it....they know so much there..
i would love to chat with you about CAH ....ever bit of info. helps
