Hi all, I am knew to this board. I just found out today that my sons test came back positive from his Newborn Screening test for CAH and the Pediactrician called me and told me he was found positive for this. He kept telling me that there was a good chance it was a false positive but for some reason I dont believe him. Is it possible that there is just a false positive and my son doesnt have it?? We got tomorrow to and get paper work so he can be retested. I am so scared...it was a rough pregnancy and he was born early, 4 weeks, and he had probs with breathing, he was breathing fast and still does, he even has times where he will like take a break from breathing and then starts up again and breaths real fast. Does this sound like CAH??? He is 14 days old today and they said it can take 1 to 3 weeks to get these new test results back and I read that if untreated a newborn can die with thin the first week and up to 6 weeks after being born, so if it takes another week for results he will already be 3 weeks old and if it takes 3 weeks he will be 5 weeks old before they can start treatment, but the Ped seemed so confident that it could be a falase positive and I only think that was cause I was so upset, I almost lost him when he was born cause he was not breathing on his own and his breathing was so fast it was so scary and now this. I have looked it up and tried to understand this but really I dont. I dont know what to look for incase something happens between now and when we get the results back......he eats so good for being a premie, he was 5# 12 and a half ozs and already weights 6# 2 ozs and never vomits and has really good wet diapers. No diarhea or anything he seems to be doing so good, he still has the fast breathing at times and periodic spells where he will skip a couple of breaths.....does this sound like CAH??? What if anything is there to look for where I should get him to the hospital right away, I just couldnt handle loosing my lil miracle baby. I dont even know what to look for that could cause harm to him, but if there is anything I should look for please tell me, I am so scared, I fought so hard to have this lil guy and now they are saying I could loose him and just dont know what to do, his dad isnt saying much cause he just doesnt believe it is possible, but it came back positive. But I guess that is his way of dealing with it.....denial. If it does come back again positive what lies ahead for my son and me. What will happen and what will they do and how will his life be living and growing up??
I am so sorry to come here the first time asking so much but I am just scared out of my mind, I wont even sleep cause I want to make sure he is breathing and everything, tomorrow I am going to learn well get refreshed with CPR just incase something happens.....but my sister who is so supportive found this site which seems to be so wonderfull and I wanted to try and get involved and I hope it was ok that I came here and vented and asked a million questions. Please anything you can share even if it is scary please share with me, I need to be as prepared as possibly can be for what can happen and really need to know if anyone has ever heard that a lot of times there is a such thing as a false positive for this test alot or if he was just trying to calm me down.
Thank you all so much and may God be with you and your loved ones.
Sincerely,
Vicki (Baby Connors mom)
My email addy is:
livingitupin2003@aol.com
hope it was ok to leave my addy here, if anyone would like to email me that would be fine.
