Congenital Adrenal Hyperplasia

ATTENTION MEDIA & OTHERS SEEKING INTERVIEWS! 
If you represent a media company, are a student writing a report or anyone interested in interviewing our visitors, please seek permission (see email address at the bottom of the page) before posting your requests or emailing solicitations for any talk show, magazine, thesis, census or other interview on any message board on this site. If not, your posts WILL be removed. Please respect the privacy of our members.

    Return to Message IndexPost reply       
re: re: Labia minor
Jul. 25th, 2008   8:54pm

 

I wanted to add that you aren't alone and I was surprised by the age difference.  

I liked the way I was born and wished that i had been asked before they surgically altered me but I have to live with what he did. 

I did ask the surgeon and got " that was the best technolgy available at the time and medicine isn't always right but it is forever changing."

They don't ask our opinion but do what they think is acceptable.

Do they put in labia minors now?   I don't want one as I look at waht that man did as a reminder ...a war scar on what is done when in the name to make one acceptable to society. That body part isn't mine but that man's idea, the ped endo and all the smiling residents. The real me is what I was born with. 

I had a doctor tell me that what was done to me was exquisite and the look I gave him back was responded to with sadness and guilt that I didn't buy his bs. 

Anyone that I've slept with does know How I was born and about CAH because I made a promise to be true to myself. They are sleeping with me and not the surgical area. It's either you support me or off you go and that works. It's, I've never heard about CAH and I don't have anything that deep to tell you or I've been told about their relatives with medical problems.   Yep, I've had unkind words about the surgical work but that never stopped him from sleeping with me. I've had that it looks like a blow -up doll and I couldn't agree more. I've had them show me their own surgical issues.

I often wonder if we would be better off with our own page or message board becuase it doesn't feel good to have to talk about things that are really about living with CAH on a controversy board. We all have CAH and can't be on the main page because some parent will be upset. And it will knock over the apple cart that it isn't all like Leave it to Beaver and the Cleavers  ....the TV Show.       

aimee




    Return to Message IndexPost reply       
This Thread





- Post a reply - 

page processed in 0.0372350215912 seconds
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks