Congenital Adrenal Hyperplasia

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re: Labia minor
Jul. 20th, 2008   10:18pm

Hi Petule

I'm 22 and have CAH.  I had vaginoplasty and clitoriplasty when i was a newborn & found out about it only a few years ago by accident at a routine gynecologist appointment.  my parents never told me about it so i never realized i was different until the gynecologist told me something didn't look right. He showed me what a typical vagina looked liked & mine definatley looked nothing like that. I don't have a labia minor & no clitoral hood or clitorial sensation.  i only have a tiny bit of skin covering my clitoris.  I just recently found out who did my surgery but the doctor is no longer alive so i know nothing about it & my parents just avoid the issue completley & tell me i'm fine.  ive never had sex & now i'm extremely afraid of what a guy is gonna think.  I feel like such a freak & there is nothing i can do to fix it.  The only option is plastic surgery but obviously i'm not gonna let another doctor mess around down there.  enough damage has been done.  I'm sorry i don't have answer as to why our doctors didn't do a better job.  I wish i did.  just wanted to let u know u r not alone.

Three




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