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re: re: re: re: re: relationships and cah to Isobelle Jul. 15th, 2008 9:03am
Hi, I read all the other posts and many said it so well...First, you are lucky to KNOW about this disease and this wonderful support group you're now in. Your daughter probably will have lots of weird things happen going through the years (I did, but I wasn't diagnosed until I was 18ish). The parents just didn't have this type of medical info that's out there now. I especially have and had a really hard time with the severe facial hair growth. Trying to explain to your college roomies why you have razor nicks on your face UGGGG. Yet 30 years later 3 of them are still good friends of mine. I never told them, I danced around the subject. This is probably the most important aspect--being a girl with facial hair doesn't do alot for self-esteem but you can help that: electrolysis, laser hair removal, shaving. When my then boyfriend proposed marriage, I was straight out with it and happily we've been married 24 years. I have lost 80 pounds twice (I should be a stick figure, 'cuz I don't eat much and never did) blame it on the disease and try to keep the weight of your daughter under control. When it's time, let her know all that's out there about her condition. Yes, it plays with your head so keep that in mind also. She will probably have fatigue, moodiness, anger and just about everything else under the sun, just remember it's all exacerbated by the illness. Find a good endo, try the meds (most take 6 months to see results). It's a game of patience and it is an uphill battle, no question. I wish you and your daughter all the best and the people that post here are GREAT !!!! Carol
