Congenital Adrenal Hyperplasia

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re: re: re: what is the wright choice
Mar. 19th, 2006   4:29pm

Hi Lisa,

My daughter is almost 6 and has not had any surgery but unlike your daughter she is not self conscious about her genitals.  She knows that she looks different to me but to her it is all right. 

The decision to have or not to have surgery is the most difficult of decisions.  I believe that no matter what you choose you will have worries about whether or not you did the right thing.  At your daughter's age, doctors do not recommend surgery.  They suggest to have surgery either very young or around puberty so the child can help in the decision making process.  This being the case I would try to help your daughter's self esteem, keep her genitals private (who needs to see them anyway?)  and know that your decision to not have surgery was chosen because you felt that allowing her to be in the decision process was in her best interest.  Also, feel conforted that this decision is not irreversable.  Surgery can and may happen for her at a later date.  For now, I would tell her (and have told my daughter) that clitorises come in different sizes just like hands, ears, and noses etc.  Try to keep it lighthearted and simple.  Try not to worry about her genitals and instead focus on enjoying your daughter.  Believe me, I know this is easier said than done.   Take care, Julia

Julia S




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