Hi,
I'm a 19y/o girl (lol obviously!) with SWCAH....I'm from Sydney....live an extremely normal life....now - but did have a period that was rough. I am extremely willing to share any of my experiences with you or your daughters if they ever wanted to talk about things. I've found that talking things through helps so much (I have a 'pen-friend' in her 30's, who has been my go-too person since i was 8!)
I can be contacted at - anna_bryant89(at)hotmail.com (sorry I don't like to hyperlink it, so just replace (at) with @ !!!)
I'm positive that as a mother of two wonderful and special girls with CAH, that you've had too many emotional rollercoasters (I've watched my mum when I'm sick - she sometimes freaks me out when she worries as much as she does)....so I really hope you can get the advice and support you need.
Take Care.
ANna
