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re: For those who have had kids admitted to hospitals in crisis - A couple of questions? Jul. 8th, 2007 11:06pm
Hi Michelle
My SWCAH daughter is 8 so we have had quite a few hospital visits, especially when she was younger, not so much lately. We have had mainly good experiences, however have had a couple of not so good experiences. We have always gone to the same hospital. Luckily for us, our daughters Endo is a consultant at the hospital and very highly regarded, so after we expressed concern to him about the possibility of having to wait in A&E for hours as is often the case, he wrote a letter which we present to A&E each time we go in. The letter states that Grace must be seen immediately upon presentation at A&E and outlines the procedures that need to be followed (take blood) and that hydrocortisone and fluids needs to be administered via IV as soon as possible (they have always given her about 50mg hydrocortisone in the first instance). One time this procedure was not followed and she waited about 2 hours for the hydrocortisone, luckily she was still OK. I mentioned this to her Endo and he was furious and promptly notified the head of A&E about his concerns. If you can, go to the same hospital each time and they will have her history on file. Get a letter from her Endo stating that if she presents at A&E unwell she needs to be seen immediately and state the treatment that is required. By injecting your daughter at home you are "playing it safe" and this should keep her covered for a while. We usually don't inject our daughter at home, we have a couple of times though, but if I knew she wasn't going to be seen immediately at the hospital I probably would. Good luck, I remember back to when my daughter was 2 and we would have 2 or 3 hospital visits a year. She recently had a short stay in hospital with vomitting and that was a record 3 years since her last visit, so I think as they get older their immune system develops and they don't pick up tummy bugs quite as easily. My 5 year old nonCAH daughter was vomitting all day last Thursday so we sent Grace to Nana and Pa's for a couple of days to be on the safe side.
