Congenital Adrenal Hyperplasia

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re: re: re: Fludricortisone - noticed anything different?
Mar. 31st, 2006   4:24am

Hi everyone,

I had some issues when I found the white fludro this morning also,all is not lost, & it was great to see some feed back. The specialists at the kids hospital we go to were unaware of it, my local pharmacist had to check it out too & kindly our local hospitals pharmacist rang me & read me the fax from the drug company, the main reason for the colour change  is that it is cheaper to manufacture, amongst others.The main issue I discussed was  saftey  &  this was shared by the above.

A call to the drug company was productive, I spoke to product management & development , who were interested & took my following concerns on with interest & respect & are following it up.

My concerns were :Kids may easily distinguish the tablets by coluor from an early age, or when appropriate.( taking exra white ones O.K pink NOT, ie Hysone are white.)Verry handy info for little salt losers , who may get sick a lot., as sadly my six year old has.

I usually carry our own meds & dispense them (with nurse checking ) myself in hospital. Because they both say the word cortisone as the last syllable, & many a time before I did this staff have presented us with a double dose of FLUDRO!which was easily spotted by us  because of the colour, but Im afraid that now when they are cut up & in the dispensing cup they would be indistinguishable.Bottom line is this would be dangerous, & at home too They"ll need to be dispensed in seperate cups to err on the side of caution.

I"m expecting to have parley, with the lovely lady from the drug company again in a few days,& would LOVE any other anicdotes or experiences,  anyone else has, that would be relavent to : "keeping the Florinef a contrasting colour to the Hysone."

Thanks, Cyntha.

 

 

 

 

Cynthia




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