First of all the desire to procreate isn't selfish. Making a baby might be, but raising a child certainly isn't, and anyone who knows they have a chance of having a CAH child would certainly know the great sacrifices CAH parents must make for their children.
I have two children with CAH (four children altogether). They are as worthy of life as anyone else. All people suffer in one way or another. There are perfectly healthy people who experience suffering due to their situation. Why, I was noting the other day that Angelina Jolie, famous movie star, professional model, daughter of Academy Award-winning actor Jon Voight, married to Billy Bob Thornton, named the world's sexiest woman in Swedish magazine Café -- has been in therapy for depression. Suffering is not limited to physical causes, and most people with what would be considered sever physical disbilities, tend to be happer on the average, since they have a greater appreciation for life, especially the simpler, more meaningful things in life.
To decide to not have children because they might have CHA, would be to belittle the worth of those who have CAH. Should they have not been born? To measure personal value in such a shallow way would leave all of us falling short of such a yard stick.