Archives July 2004 page 1

Main Archives PageJuly 2004
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Kaye:

Keep us in your prayers

(Jul. 1st, 2004 2:05am)

Laura:

re: Keep us in your prayers

(Jul. 1st, 2004 9:18am)

Amber:

re: re: Keep us in your prayers

(Jul. 1st, 2004 12:51pm)

louise:

will do. please keep us in yours as well. we see a 2nd opinion on the 6th! (nt)

(Jul. 1st, 2004 9:38pm)

Kaye:

re: re: re: Keep us in your prayers

(Jul. 1st, 2004 11:33pm)

louise:

yeah!!!

(Jul. 2nd, 2004 7:29am)

Kaye:

re: yeah!!!

(Jul. 2nd, 2004 12:52pm)

Kaye:

above post on suggestions for taking the pill...

(Jul. 2nd, 2004 12:54pm)

louise:

re: above post on suggestions for taking the pill...

(Jul. 2nd, 2004 2:29pm)

Hope:

If she’s used to a liquid

(Jul. 2nd, 2004 3:25pm)

Julia S:

re: If she’s used to a liquid

(Jul. 2nd, 2004 7:34pm)

Braydensmom:

re: swallowing the cortef pill

(Jul. 2nd, 2004 11:51pm)

Janet T.:

re: re: swallowing the cortef pill

(Jul. 3rd, 2004 1:23pm)

Kaye:

re: re: re: swallowing the cortef pill

(Jul. 4th, 2004 1:59am)

Laura:

question for Danny...

(Jul. 1st, 2004 9:34am)

Danny Carlton:

re: question for Danny...

(Jul. 1st, 2004 7:10pm)

Elizabeth:

re: re: question for Danny...

(Jul. 1st, 2004 11:30pm)

Danny Carlton:

re: re: re: question for Danny... (to Elizabeth and Betsy)

(Jul. 2nd, 2004 6:13am)

JANE:

re: question for Danny...

(Jul. 1st, 2004 10:00pm)

Betsy:

registering

(Jul. 1st, 2004 11:45pm)

Laura:

re: registering

(Jul. 2nd, 2004 6:41am)

Tracy:

re: re: registering

(Jul. 2nd, 2004 9:22am)

Jessica K:

re: re: re: registering

(Jul. 2nd, 2004 10:30am)

Laura:

re: re: re: registering

(Jul. 2nd, 2004 11:02am)

Hope:

re: re: re: re: registering

(Jul. 2nd, 2004 11:08am)

AM:

re: re: re: re: re: registering

(Jul. 2nd, 2004 12:03pm)

Susan A.:

re: re: re: re: re: re: registering

(Jul. 2nd, 2004 12:13pm)

Kaye:

Oh, like star bellied sneetches vs. those without? :) Just some levity!

(Jul. 2nd, 2004 12:36pm)

Danny Carlton:

The book I’m writing

(Jul. 2nd, 2004 12:18pm)

Kaye:

re: The book I’m writing

(Jul. 2nd, 2004 12:38pm)

Danny Carlton:

re: re: The book I’m writing

(Jul. 2nd, 2004 7:37pm)

CHerry Lane:

re: re: registering

(Jul. 2nd, 2004 12:47pm)

Kaye:

Good point Cherry! (nt)

(Jul. 2nd, 2004 12:52pm)

katie:

anyone out there from south carolina?? (nt)

(Jul. 2nd, 2004 9:02am)

dana brown:

re: anyone out there from south carolina??

(Jul. 2nd, 2004 1:16pm)

dana brown:

re: anyone out there from south carolina??

(Jul. 2nd, 2004 1:20pm)

louise:

re: re: anyone out there from south carolina??

(Jul. 2nd, 2004 2:20pm)

Tanya Sanders:

re: anyone out there from south carolina??

(Jul. 15th, 2004 9:01am)

Laura:

undersuppression

(Jul. 2nd, 2004 3:24pm)

Hope:

Does she take her meds with food or milk?

(Jul. 2nd, 2004 3:28pm)

Michelle R:

re: Does she take her meds with food or milk?

(Jul. 2nd, 2004 4:27pm)

JANE:

re: undersuppression

(Jul. 6th, 2004 12:57am)

JANE:

re: re: undersuppression

(Jul. 6th, 2004 12:58am)

Laura:

re: re: re: undersuppression

(Jul. 6th, 2004 9:04am)

skynard:

headaches

(Jul. 2nd, 2004 5:36pm)

Kristin:

re: headaches

(Jul. 7th, 2004 3:33am)

Belinda:

re: re: headaches

(Jul. 9th, 2004 7:47am)

Julia S:

Need info on 24-hour urine profile

(Jul. 3rd, 2004 1:39am)

LauraK:

re: Need info on 24-hour urine profile

(Jul. 3rd, 2004 10:33am)

anon:

re: Need info on 24-hour urine profile

(Jul. 3rd, 2004 12:58pm)

Julia S:

re: re: Need info on 24-hour urine profile

(Jul. 3rd, 2004 2:02pm)

ValerieD:

re: re: re: Need info on 24-hour urine profile

(Jul. 5th, 2004 10:34am)

Sherry:

Had trouble with ER nurses and Doctor

(Jul. 3rd, 2004 4:31pm)

Jessica K:

re: Had trouble with ER nurses and Doctor

(Jul. 3rd, 2004 5:27pm)

Cindy:

re: Had trouble with ER nurses and Doctor

(Jul. 3rd, 2004 6:18pm)

louise:

re: re: Had trouble with ER nurses and Doctor

(Jul. 3rd, 2004 9:38pm)

Cherry lane:

re: re: re: Had trouble with ER nurses and Doctor

(Jul. 4th, 2004 4:28am)

Daisy:

re: re: re: Had trouble with ER nurses and Doctor

(Jul. 4th, 2004 12:27pm)

jenny:

re: Had trouble with ER nurses and Doctor

(Jul. 3rd, 2004 11:28pm)

Sherry:

Thanks for all your support!

(Jul. 4th, 2004 4:18pm)

Heather:

re: Thanks for all your support!

(Jul. 4th, 2004 7:48pm)

Laura:

re: re: an emergency letter I hand to the E.R.

(Jul. 4th, 2004 9:13pm)

Sue:

re: re: re: an emergency letter I hand to the E.R.

(Jul. 5th, 2004 1:39am)

Lisa V.:

re: Had trouble with ER nurses and Doctor

(Jul. 5th, 2004 4:12pm)

JanetD:

re: Had trouble with ER nurses and Doctor

(Jul. 6th, 2004 10:05am)

Jen:

Teething and stress dose

(Jul. 3rd, 2004 9:01pm)

louise:

re: Teething and stress dose

(Jul. 3rd, 2004 9:40pm)

Jen:

re: re: Teething and stress dose

(Jul. 3rd, 2004 10:21pm)

Jen:

re: re: Teething and stress dose

(Jul. 3rd, 2004 10:28pm)

jenn:

re: re: re: Teething and stress dose

(Jul. 5th, 2004 8:28am)

JanetD:

re: Teething and stress dose

(Jul. 6th, 2004 9:58am)

Kelly Leight, CARES Foundation:

Spring/Summer Newsletter available online

(Jul. 5th, 2004 12:59pm)

kathy:

states that don’t do newborn screening?

(Jul. 5th, 2004 5:23pm)

Danny Carlton:

re: states that don’t do newborn screening?

(Jul. 5th, 2004 6:41pm)

Betsy:

pssst...time for an update in your own backyard, Danny

(Jul. 5th, 2004 7:04pm)

Betsy:

re: pssst...time for an update in your own backyard, Danny

(Jul. 5th, 2004 7:21pm)

Hope:

Complete list on the March of Dimes site

(Jul. 5th, 2004 11:00pm)

Danny Carlton:

re: re: pssst...time for an update in your own backyard, Danny

(Jul. 6th, 2004 7:39am)

Danny Carlton:

re: pssst...time for an update in your own backyard, Danny

(Jul. 6th, 2004 7:37am)

kathy:

re: re: pssst...time for an update in your own backyard, Danny

(Jul. 6th, 2004 3:02pm)

Elissa:

prednisolone and growth

(Jul. 5th, 2004 6:52pm)

Julia S:

re: prednisolone and growth

(Jul. 5th, 2004 8:07pm)

Cassy:

re: re: prednisolone and growth

(Jul. 5th, 2004 10:11pm)

JANE:

re: prednisolone and growth

(Jul. 6th, 2004 12:43am)

JANE:

re: re: prednisolone and growth

(Jul. 6th, 2004 12:51am)

Jessica K:

re: re: re: prednisolone and growth

(Jul. 6th, 2004 1:23pm)

Toni:

Good point Jessica!

(Jul. 9th, 2004 3:45pm)

Jessica K:

re: Good point Jessica!

(Jul. 9th, 2004 4:46pm)

Mary:

re: re: Good point Jessica!

(Jul. 9th, 2004 4:58pm)

Elissa:

re: prednisolone and growth-response

(Jul. 25th, 2004 6:29pm)

Rachel:

What is circadian rhythm dosing?

(Jul. 6th, 2004 7:27am)

Julia S:

re: What is circadian rhythm dosing?

(Jul. 6th, 2004 8:48pm)

Andrew:

re: What is circadian rhythm dosing?

(Jul. 8th, 2004 8:59am)

Rachel:

Many thanks!

(Jul. 8th, 2004 11:47am)

Kaye:

some questions

(Jul. 6th, 2004 1:21pm)

Kaye:

re: some questions: by the way, for susan, braydens mom

(Jul. 6th, 2004 1:28pm)

Kaye:

forgot my second question, old age seeping in! Lemme’ go take my ginko. ;) (nt)

(Jul. 6th, 2004 1:32pm)

Braydensmom:

re: re: some questions: by the way, for susan, braydens mom

(Jul. 6th, 2004 10:41pm)

JudyW:

re: re: re: some questions: by the way, for susan, braydens mom

(Jul. 7th, 2004 7:39am)

Julia S:

re: re: re: some questions: by the way, for susan, braydens mom

(Jul. 7th, 2004 3:59pm)

Mel:

re: some questions

(Jul. 6th, 2004 6:06pm)

Julia S:

re: re: some questions

(Jul. 6th, 2004 8:44pm)

Laura:

re: re: re: I think they start out higher then graduate to lower if needed...

(Jul. 7th, 2004 8:33am)

Stacy Osborn:

re: re: re: re: I think they start out higher then graduate to lower if needed...

(Jul. 7th, 2004 11:47am)

niki:

med alert delivery??

(Jul. 6th, 2004 1:39pm)

Judy W:

re: med alert delivery??

(Jul. 6th, 2004 2:58pm)

corri:

re: re: med alert delivery??

(Jul. 6th, 2004 5:56pm)

Hope:

Ours arrived in less than a week.

(Jul. 6th, 2004 6:05pm)

niki:

thanks

(Jul. 7th, 2004 11:15am)

Mary:

re: thanks

(Jul. 7th, 2004 11:58am)

TIFFANY:

re: med alert delivery??

(Jul. 7th, 2004 8:01pm)

Russ:

19 yr old son has stopped taking his cortef... has not taken it for two yrs now (nt)

(Jul. 6th, 2004 2:32pm)

Russ:

re: 19 yr old son has stopped taking his cortef... has not taken it for two yrs now

(Jul. 6th, 2004 2:34pm)

Kim:

re: re: 19 yr old son has stopped taking his cortef... has not taken it for two yrs now

(Jul. 6th, 2004 2:44pm)

Russ:

re: re: re: 19 yr old son has stopped taking his cortef... has not taken it for two yrs now

(Jul. 6th, 2004 2:50pm)

Russ:

re: re: re: 19 yr old son has stopped taking his cortef... has not taken it for two yrs now

(Jul. 6th, 2004 2:52pm)

Danny Carlton:

re: re: re: re: 19 yr old son has stopped taking his cortef... has not taken it for two yrs now

(Jul. 6th, 2004 5:16pm)

Kim:

re: re: re: re: re: 19 yr old son has stopped taking his cortef... has not taken it for two yrs now

(Jul. 6th, 2004 5:29pm)

Russ:

re: re: re: re: re: re: 19 yr old son has stopped taking his cortef... has not taken it for two yrs

(Jul. 7th, 2004 10:44am)

JudyW:

re: re: re: re: re: re: re: 19 yr old son has stopped taking his cortef... has not taken it for two yrs

(Jul. 7th, 2004 11:37am)

Kim:

re: 19 yr old son has stopped taking his cortef... has not taken it for two yrs

(Jul. 7th, 2004 12:06pm)

bonnie:

re: re: 19 yr old son has stopped taking his cortef... has not taken it for two yrs

(Jul. 10th, 2004 8:47pm)

Tim:

CAH gathering?

(Jul. 6th, 2004 2:49pm)

Jerry:

re: CAH gathering?

(Jul. 6th, 2004 4:11pm)

Braydensmom:

re: CAH gathering?

(Jul. 6th, 2004 10:44pm)

Laura :

furious over description of CAH in NBS article from University Hospitals Newsletter

(Jul. 6th, 2004 4:08pm)

Jessica K:

re: furious over description of CAH in NBS article from University Hospitals Newsletter

(Jul. 6th, 2004 4:25pm)

Laura:

re: re: furious over description of CAH in NBS article from University Hospitals Newsletter

(Jul. 6th, 2004 5:29pm)

Cherry Lane:

re: furious over description of CAH in NBS article from University Hospitals Newsletter

(Jul. 6th, 2004 5:28pm)

Laura:

re: re: To Cherry

(Jul. 6th, 2004 5:36pm)

Danny Carlton:

re: re: re: To Cherry

(Jul. 6th, 2004 5:38pm)

Kay:

re: re: re: re: To Cherry

(Jul. 12th, 2004 11:21am)

Danny Carlton:

re: furious over description of CAH in NBS article from University Hospitals Newsletter

(Jul. 6th, 2004 6:07pm)

Danny Carlton:

re: furious over description of CAH in NBS article from University Hospitals Newsletter(UPDATE!!)

(Jul. 7th, 2004 10:35am)

Amber:

Called Rainbow Babies today

(Jul. 7th, 2004 1:30pm)

Laura:

re: This mis-information could be in newsletters across the U.S.

(Jul. 8th, 2004 3:58pm)

JudyW:

re: re: This mis-information could be in newsletters across the U.S.

(Jul. 8th, 2004 4:50pm)

Danny Carlton:

re: re: re: This mis-information could be in newsletters across the U.S.

(Jul. 9th, 2004 5:51am)

JudyW:

re: re: re: re: This mis-information could be in newsletters across the U.S.

(Jul. 9th, 2004 8:26am)

Danny Carlton:

re: re: re: re: re: This mis-information could be in newsletters across the U.S.

(Jul. 9th, 2004 10:20am)

Maggie:

17-hydroxy

(Jul. 6th, 2004 5:25pm)

kathy:

re: 17-hydroxy

(Jul. 6th, 2004 11:28pm)

Susan A.:

re: re: 17-hydroxy

(Jul. 7th, 2004 4:53am)

Toni:

re: 17-hydroxy

(Jul. 7th, 2004 5:05am)

louise:

re: 17-hydroxy

(Jul. 7th, 2004 8:14pm)

Susan A.:

(Jul. 7th, 2004 5:02am)

JudyW:

(Jul. 7th, 2004 7:25am)

Sheila:

re: re: Non- CAH related - but would like prayers

(Jul. 7th, 2004 8:08am)

Laura:

re: re: re: Non- CAH related - but would like prayers

(Jul. 7th, 2004 8:37am)

corri:

re: re: re: re: Non- CAH related - but would like prayers

(Jul. 7th, 2004 9:31am)

Betsy:

(Jul. 7th, 2004 1:23pm)

louise:

re: re: Non- CAH related - but would like prayers

(Jul. 7th, 2004 8:12pm)

JanetD:

(Jul. 8th, 2004 9:47am)

Rosalie:

(Jul. 16th, 2004 10:30am)

Pamela Foster:

New Diagnosis

(Jul. 7th, 2004 9:16am)

corri:

re: New Diagnosis

(Jul. 7th, 2004 9:30am)

Jill T.:

re: re: New Diagnosis

(Jul. 7th, 2004 4:21pm)

louise:

re: re: re: New Diagnosis

(Jul. 7th, 2004 8:07pm)

Jessica:

re: re: re: re: New Diagnosis

(Jul. 8th, 2004 12:01pm)

Jessica K:

re: New Diagnosis

(Jul. 8th, 2004 11:59am)

Dina:

to Jessica K

(Jul. 8th, 2004 10:50pm)

Jessica K:

re: to Jessica K

(Jul. 9th, 2004 4:34pm)

Tonia:

re: re: to Jessica K

(Jul. 10th, 2004 5:54pm)

Bill:

re: New Diagnosis and a question

(Jul. 13th, 2004 8:41pm)

Bill:

re: re: New Diagnosis and a question

(Jul. 13th, 2004 8:42pm)

JudyW:

re: re: New Diagnosis and a question

(Jul. 13th, 2004 9:06pm)

louise:

re: re: re: New Diagnosis and a question

(Jul. 13th, 2004 9:31pm)

Bill:

re: re: re: re: New Diagnosis and a question

(Jul. 13th, 2004 10:56pm)

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