Congenital Adrenal Hyperplasia, people and support groups
Congenital Adrenal Hyperplasia, medical sites
Congenital Adrenal Hyperplasia, FAQ
Congenital Adrenal Hyperplasia, glossary
Congenital Adrenal Hyperplasia, forum:main
Congenital Adrenal Hyperplasia, forum:lateonset
Congenital Adrenal Hyperplasia, forum:kids
Congenital Adrenal Hyperplasia, forum:controversy
Congenital Adrenal Hyperplasia, forum:UK
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What is Congenital Adrenal Hyperplasia (CAH)?

CAH is a genetic defect of the adrenal glands. A person with CAH will not be able to produce several vital hormones known as corticosteriods. CAH is treated with hormone replacement, replacing one or both of the hormones missing, generally with Cortef and Florinef. Living with CAH requires extra attention to common illnesses and stress inducing situations (injury, exercise, etc.) and very good communication with your Endocrinologist. While this site is intended to provide information, support and education for people and families with CAH, your Endocrinologist must always be your primary source for medical information, and should always be consulted regarding any medical questions.

Congenital Adrenal Hyperplasia Medical Sites

In the Medical Sites section you will find links to web sites and pages with information on the medical aspects of CAH, including technical information, medicine, screening, DNA testing, etc. Many of the links are to sites and pages for medical professional so may be hard to understand. Please refer to the CAH Glossary for definitions of some of the more common terms.

Congenital Adrenal Hyperplasia People and Support Groups


Communicating with other people or families with CAH is an essential part of living with Congenital Adrenal Hyperplasia. Through the People and Support Groups page you will find links to others who are also dealing with the condition, either themselves or a loved one. The Message Boards on this site are also an indispensable tool in networking with others around the globe who have been where you are, or will be.

Our Logo

You may have noticed that the picture on our logo changes. These are pictures submitted by those who use the message board, of themselves or their family. Each picture has someone with CAH.

Message Boards

Our Message Boards were the heart of our efforts to facilitate the Education and Support of people and families with CAH, however due to changing technology we have migrated the message boards to a new social networking platform.

Frequently Asked Questions about Congenital Adrenal Hyperplasia

Our Frequently Asked Questions were gathered from the 40,000+ messages in the Main Message Board Archives. The questions are divided into sections, based on who best could answer that question. Some sections provide links to threads within the archives that contain messages that answer the question, some have answers we have researched and gathered the data for. Two sections will answers provided by noted Endocrinologists who have graciously agreed to supply answers. Currently the FAQ section has not been completed. We will be adding answers as time goes one, please check back for updates.

Congenital Adrenal Hyperplasia Glossary

Eventually you'll find yourself wading through terms you will not understand. The CAH Glossary is provided as a quick way for you to familiarize yourself with the medical terminology pertaining to Congenital Adrenal Hyperplasia.


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